So... TSW Month 19!! It is still super difficult! My skin heals on some days but overall I dont feel good. Tired, still no sleep at nights, sleep during the morning and day (from 07:00 till 14:30 pm). I know it is bad to sleep during the day, but whatever I do, I just don't sleep at night!! I am still at home most of the time. I miss life, but I know I have to hold on and that it will be better. I think that my adrenals are tired, weak and I think that is the reason I dont feel well. I just dont know how to solve it!
LDN
I started LDN 6 weeks ago and I have to be honest. I have side effects from it. I got a terrible migraine, I have headaches, I dont sleep, I am tired and I even got some anxiety and panic attacks. For me it is difficult to "feel" if I have to take more or less. My dose is super low, started at 0,04 mg, and went up to 0,56 mg, but somehow it doesn't feel good. But I know I have to give this a chance. It can take 3 till 6 months or even longer, to see if LDN works for you.
Sports
My doctor said I have to do some sports. Very difficult if you dont feel well at all. I try to sport 15 minutes a day.
I would write a lot more if I wasn't this tired :( I don't have that much pain every day, which I am thankful for, but the itch and scratching and feeling weak, tired, bad every day makes me hopeless :( I hope there will be better times! I just do whatever I can do: diet, little sports, go outside if I can, take LDN, take supplements, sleep if I can. Is there any more I can do?
Some body parts healed (a bit):
* neck
* stomache
* small parts of arms
* shoulders
* feet
Still terrible itch and pain:
* scalp
* breast
* face/eyes
* hands
* arms
* legs
NEW BLOG AND UPDATES: August 31
LDN
I started LDN 6 weeks ago and I have to be honest. I have side effects from it. I got a terrible migraine, I have headaches, I dont sleep, I am tired and I even got some anxiety and panic attacks. For me it is difficult to "feel" if I have to take more or less. My dose is super low, started at 0,04 mg, and went up to 0,56 mg, but somehow it doesn't feel good. But I know I have to give this a chance. It can take 3 till 6 months or even longer, to see if LDN works for you.
Sports
My doctor said I have to do some sports. Very difficult if you dont feel well at all. I try to sport 15 minutes a day.
I would write a lot more if I wasn't this tired :( I don't have that much pain every day, which I am thankful for, but the itch and scratching and feeling weak, tired, bad every day makes me hopeless :( I hope there will be better times! I just do whatever I can do: diet, little sports, go outside if I can, take LDN, take supplements, sleep if I can. Is there any more I can do?
Some body parts healed (a bit):
* neck
* stomache
* small parts of arms
* shoulders
* feet
Still terrible itch and pain:
* scalp
* breast
* face/eyes
* hands
* arms
* legs
NEW BLOG AND UPDATES: August 31
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