Hi and welcome to my blog. This in an introduction post. I am 17,5 months into Topical Steriod Withdrawal (TSW). An illness/condition you get when you stop using steriods, like cremes or oral steriods (like prednison). I think it is time to make a blog about my journey so far and ofcourse update it further in the next months. What you need to know about me:
- I am 30 years old and I am living in The Netherlands
- I am 17,5 months into TSW
- I have Lyme disease
- English is not my native language, so mistakes will be there ;)
- I did not use a lot of steriods, but tried a lot the last 9 years. So actually I used it 9 years. Not much or every day (or a longer period of time), because it never helped, so I got new ones everytime, but never used much of it. However, in 2015 I got an allergic reaction and decided to use prednison in combination with Dermovate (4) and Elidel. I used the creme every day for 4 months. That was one of the biggest mistakes of my life, because it made me very addicted in a short period of time.
- As I said I tried a lot the last 9 years:
2006: Emovate (2)
2007: Emovate (2), Kenacorte 40 injection
2008: Elocon (3), Prednison
2009: Diprosone (3), Triamcinolon (2)
2010 - 2013 Elocon (3)
2014: Protopic, Prednison
2015: Dermovate (4), Elidel, Prednison
Because of my Lyme disease is it dangerous to use high potent steriods, because it weakens your immune system so much that the infection can grow in your body. That is the reason why I stopped using steriods on 27th of December 2015.
- I stopped TS, but I still have bad allergies and a very bad immune system. That is why I am going to try LDN (Low Dose Naltrexone) later this year.
- Actually, Dermovate really worked for me. But I had to take it almost EVERY DAY to keep the eczema under control. I looked really good while I was using the creme. But after a couple of weeks my skin looked very weird and different. It didn't feel that right anymore and I had the feeling I became more ill.
- I use anti-histamine, Xyzal, 5 mg per day. Maybe at one point I want to get rid of them too, but for now it's okay. It dont know if they really do anything for my body. It never really worked for my allergic reactions.
- I don't use ANY cremes, so I do moisturizer withdrawal (MW)
I will upload pictures of my TSW journey with short stories about how I felt and how it all went. So let's go and start with month 1: January 2016!
- I am 30 years old and I am living in The Netherlands
- I am 17,5 months into TSW
- I have Lyme disease
- English is not my native language, so mistakes will be there ;)
- I did not use a lot of steriods, but tried a lot the last 9 years. So actually I used it 9 years. Not much or every day (or a longer period of time), because it never helped, so I got new ones everytime, but never used much of it. However, in 2015 I got an allergic reaction and decided to use prednison in combination with Dermovate (4) and Elidel. I used the creme every day for 4 months. That was one of the biggest mistakes of my life, because it made me very addicted in a short period of time.
- As I said I tried a lot the last 9 years:
2006: Emovate (2)
2007: Emovate (2), Kenacorte 40 injection
2008: Elocon (3), Prednison
2009: Diprosone (3), Triamcinolon (2)
2010 - 2013 Elocon (3)
2014: Protopic, Prednison
2015: Dermovate (4), Elidel, Prednison
Because of my Lyme disease is it dangerous to use high potent steriods, because it weakens your immune system so much that the infection can grow in your body. That is the reason why I stopped using steriods on 27th of December 2015.
- I stopped TS, but I still have bad allergies and a very bad immune system. That is why I am going to try LDN (Low Dose Naltrexone) later this year.
- Actually, Dermovate really worked for me. But I had to take it almost EVERY DAY to keep the eczema under control. I looked really good while I was using the creme. But after a couple of weeks my skin looked very weird and different. It didn't feel that right anymore and I had the feeling I became more ill.
- I use anti-histamine, Xyzal, 5 mg per day. Maybe at one point I want to get rid of them too, but for now it's okay. It dont know if they really do anything for my body. It never really worked for my allergic reactions.
- I don't use ANY cremes, so I do moisturizer withdrawal (MW)
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