Doorgaan naar hoofdcontent

Month 10 ~ October 2016

This month I got a little break. I was feeling a bit better and could go out of the house sometimes. I even went to a concert, which was amazing. I didn't feel well, but was happy that I was able to go. My face was still red and painful. Sleeping went a bit better too. This month I didn't make a lot of pictures, so I think my skin was okay at that point. The wrinkles under my eyes were still there ofcourse... I weared sunglasses all over 2016 I guess!!



Reacties

Een reactie posten

Populaire posts van deze blog

Hello TSW Survivors! (introduction)

Hi and welcome to my blog. This in an introduction post. I am 17,5 months into Topical Steriod Withdrawal (TSW). An illness/condition you get when you stop using steriods, like cremes or oral steriods (like prednison). I think it is time to make a blog about my journey so far and ofcourse update it further in the next months. What you need to know about me: - I am 30 years old and I am living in The Netherlands - I am 17,5 months into TSW - I have Lyme disease - English is not my native language, so mistakes will be there ;) - I did not use a lot of steriods, but tried a lot the last 9 years. So actually I used it 9 years. Not much or every day (or a longer period of time), because it never helped, so I got new ones everytime, but never used much of it. However, in 2015 I got an allergic reaction and decided to use prednison in combination with Dermovate (4) and Elidel. I used the creme every day for 4 months. That was one of the biggest mistakes of my life, because it made me ver
Een reactie posten
Meer lezen

Month 12 ~ December 2016

O yeah, did I already told you about the itch on my scalp? Wow, it was terrible in december as well! I slept A LOT in december. Sometimes I was still in bed at 17:00 pm. Not normal? Yeah I know, but I was so tired! I had a little surgery that made me miserable. I still hope they didn't use steriods in the local anaesthesia (they used Xylocaïne)!! But I didn't know they sometimes use steriods in anaesthesia. I read later that I have should ask about it, but I didn't. I was too scared to ask after a couple of weeks. So I searched the internet about it and I don't think they did use steriods in the injection. So I slept a lot, and was able to celebrate Christmas, wasn't feeling good, but was able to be with my family. My scalp was painful and very itchy and flaky.  
Een reactie posten
Meer lezen

Month 19 ~ July 2017

So... TSW Month 19!! It is still super difficult! My skin heals on some days but overall I dont feel good. Tired, still no sleep at nights, sleep during the morning and day (from 07:00 till 14:30 pm). I know it is bad to sleep during the day, but whatever I do, I just don't sleep at night!! I am still at home most of the time. I miss life, but I know I have to hold on and that it will be better. I think that my adrenals are tired, weak and I think that is the reason I dont feel well. I just dont know how to solve it! LDN I started LDN 6 weeks ago and I have to be honest. I have side effects from it. I got a terrible migraine, I have headaches, I dont sleep, I am tired and I even got some anxiety and panic attacks. For me it is difficult to "feel" if I have to take more or less. My dose is super low, started at 0,04 mg, and went up to 0,56 mg, but somehow it doesn't feel good. But I know I have to give this a chance. It can take 3 till 6 months or even longer, to se
Een reactie posten
Meer lezen