And then I made a mistake. I went to my dermatologist and asked for UVB light therapy. I wasn't patient anymore and wanted that it would go quicker. So I started light therapy at the hospital, 3 times a week. I just wanted to give it another try, because I did it too in 2008 and went well (but i still used steriods back then). So I flared more the first 2 weeks, but after that it went really well. Until that one day that was too much for my body I guess. In 2 minutes you get all the sun you need for one day. I think that my body and immune system could not handle it anymore. It was too much for my body. I was getting colds and getting more ill and tired again. I was almost at the end of the therapy and wanted to finish it. But is was just too much!
So... TSW Month 19!! It is still super difficult! My skin heals on some days but overall I dont feel good. Tired, still no sleep at nights, sleep during the morning and day (from 07:00 till 14:30 pm). I know it is bad to sleep during the day, but whatever I do, I just don't sleep at night!! I am still at home most of the time. I miss life, but I know I have to hold on and that it will be better. I think that my adrenals are tired, weak and I think that is the reason I dont feel well. I just dont know how to solve it! LDN I started LDN 6 weeks ago and I have to be honest. I have side effects from it. I got a terrible migraine, I have headaches, I dont sleep, I am tired and I even got some anxiety and panic attacks. For me it is difficult to "feel" if I have to take more or less. My dose is super low, started at 0,04 mg, and went up to 0,56 mg, but somehow it doesn't feel good. But I know I have to give this a chance. It can take 3 till 6 months or even longer, to se...
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