Doorgaan naar hoofdcontent

Month 4 ~ April 2016

April was a very tough month as well. My skin felt super sensitive, sleeping went a bit better, but still a lot of redness, dryness. My face felt painful every day. I am still a lot in bed, most of the time housebound. Feeling very alone in your body. Almost no energy. But at the end of the month... a bit of healing happened...





Reacties

Een reactie posten

Populaire posts van deze blog

Month 14 & 15 ~ February & March 2017

And then I made a mistake. I went to my dermatologist and asked for UVB light therapy. I wasn't patient anymore and wanted that it would go quicker. So I started light therapy at the hospital, 3 times a week. I just wanted to give it another try, because I did it too in 2008 and went well (but i still used steriods back then). So I flared more the first 2 weeks, but after that it went really well. Until that one day that was too much for my body I guess. In 2 minutes you get all the sun you need for one day. I think that my body and immune system could not handle it anymore. It was too much for my body. I was getting colds and getting more ill and tired again. I was almost at the end of the therapy and wanted to finish it. But is was just too much!
Een reactie posten
Meer lezen

Month 11 ~ November 2016

Although my scalp was healing and no oozing, I hated the itch and flares on my head! Flakes everywhere!! I hated it so much! I changed shampoos, didn't wash it at all, I tried everything. But every day the terrible itch, it kept me awake. If I scratched my head was bleeding after the scratching. My face flared red every day. It wasn't my worse time, but it was definitely very itchy and painful. I slept a bit better again, was awake at night, but after scratching I could sleep. Wake up in the morning was very difficult and stayed in bed till 12:00 pm. I know, it is bad, but if you are feeling so bad you just want to stay in bed. And still: the wrinkles under my eyes :(
Een reactie posten
Meer lezen

Hello TSW Survivors! (introduction)

Hi and welcome to my blog. This in an introduction post. I am 17,5 months into Topical Steriod Withdrawal (TSW). An illness/condition you get when you stop using steriods, like cremes or oral steriods (like prednison). I think it is time to make a blog about my journey so far and ofcourse update it further in the next months. What you need to know about me: - I am 30 years old and I am living in The Netherlands - I am 17,5 months into TSW - I have Lyme disease - English is not my native language, so mistakes will be there ;) - I did not use a lot of steriods, but tried a lot the last 9 years. So actually I used it 9 years. Not much or every day (or a longer period of time), because it never helped, so I got new ones everytime, but never used much of it. However, in 2015 I got an allergic reaction and decided to use prednison in combination with Dermovate (4) and Elidel. I used the creme every day for 4 months. That was one of the biggest mistakes of my life, because it made me ver...
Een reactie posten
Meer lezen